The benefits of the Botox injections I had last month only lasted 11 days, after three days of being sore after the procedure. So that's another fail to add to the list. I really am going to push for the Mitrofanoff when I see my consultant at the end of the month.
From my own research on the net, talking to people who have had cystectomies due to IC, the Neobladder never works in removing the source of the pain, and these ladies have had to go back to have it converted into a Mitrofanoff although my consultant says otherwise. I really have had more grief than I can tolerate, and although I am thankful to him for everything he's done for me, it's time he respected my wishes. This is what I asked for to start with, and it's my body after all. With all his concerns about my age and being able to have children,I can't have children in my current state.
I don't expect the removal for the trigone and top of urethra to remove all the pain, it maybe that I end up needing sacral nerve therapy in addition to having a Mitrofanoff to help reduce the pain (if the trust funds it).
